Bacteria, sick people, even sicker people with their smokes and iv's, doctors and staff feeding their faces coke, chips and deep fried foods from the very unhealthy caff (and having a fag around the corner).
Seriously makes me sick. James requires a high fat diet. To me that is NOT chips and gravy! The food here ( Brisbane's RCH) is horrid for sick kids and maybe the limited frozen vegetables are actually the healthiest option. Yesterday lunch was chicken nuggets and chips. No veg at all. Other meals have been mash, chips, potatoes gems and a meat product (sausage, patty (or what resembles these) or chicken strip). Followed by some sort of artificial dairy with colours and flavours - custards, cakes or mouses. Snacks are msg packed potato chips, shape biccies, biscuits and yogurts. I asked for plain and here that equates to vanilla.
They want us to feed James shakes made with gmo corn syrups and chemicals that I would never want anyone to consume. I question how can this be beneficial to the immune system .. To stay healthy? To rebuild sick bodies? To give kids (and adults) the best start to regaining health and overcoming illness? Hhmmmm
Ten years ago a CF diet was recommended to be low fat and high protein apparently. So clearly there is learning and research to still be done. No one talks about high fat being nuts, oils, olives, coconut oil / cream and good quality dairy. Instead the hospital recommend CF diet outlined in the parents' manual is deep fried, take away, marg, sausage rolls, hot dogs etc. Even Cystic Fibrosis Qld sent as lunch vouchers to McDonalds and KFC. I feel like I'm constantly smashing my head against the wall. I need to contact Jamie!
We have pre prepared as much as we can food wise. And I'm loaded with raw nut bars, supplements, and home made high fat organic meals. We don't eat 100% organic as who can afford it or even source it? But meat is our main concern of avoiding toxins (this kid is costing us a fortune) especially in here.
We have caved under pressure a little though during our admission and allowed James a few things we would generally cringe over and do everything to avoid. But when being threatened feeding tubes we thought a bit of choc custard and crisps (no msg) don't sound the worse thing ever. It's such a hard line to draw in the sand and a constant head fuck! The variables of a high fat, high salt, nutritious, non toxic, enzyme dosing and a fussy toddler are not fun. Just one aspect of CF that is ever so consuming. Giving him a little of this shit especially in front of the dieticians also get them off my fucking case.
We saw Dr Lim before coming in and he has suggested James' diet change to no dairy (except yogurt and maybe butter), sugar or wheat. This will help avoid inflammation and mucus. As the bugs can't sent up camp in his lungs if the mucus is minimal. So this will be our new game plan on the other side!
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