Thursday, 28 November 2013

First tune up. Day one

Well at least the anxiety of anticipation is over! James has his bronch which found lots of mucus. They also inserted a PIC line which is easier than a canular to give antibiotics intravenously. They struggled with the PIC line and it took 2 hours and he's covered in holes where they attempted It. They start the iv's tonight at 10.

He came through it well though and after the initial woozy shock he's back to his normal happy social talkative self. Hoping that he tolerates the Iv's too. They are two different kinds of hard core antibiotics to kill gram negative bacterias like pseudomonas. 

As parents to a child with CF we went into combat to make sure everything was clean. As lovely Jess sent me a list of tips that she does to stay clean on her tune ups. And Jess was spot on - the cupboards and fridge may have been missed! And as for the cot.. Well there was blood on it.. Yup blood! Quite a bit down the railings! So I cleaned this room like a crazy nut! But it's a no brainier you just gotta! 

So all in all we are relieved this day is over. We bought James a Medical toy kit and that's worked a treat. 

❤️❤️

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