Two years ago I didn't know what Cystic fibrosis was. I recall studying it briefly in my Early Childhood Teaching degree (diversities subject) but that's it. I could recall it was genetic, but my knowledge was no further than that. I know of two people who's children had / have CF but it didn't mean a lot to me to be honest. I knew they had a life threatening condition, but that was all.
But when my world came crashing down at James' diagnoses my world quickly became consumed with CF.
Now my constant daily thoughts surround Cystic Fibrosis and sometimes I feel ever so consumed. Words I had never heard of my auto correct knows to correct or predict. Psuedomonas, d508, culture, sputum, bronchoscope, mutations, Toby, and many many more.
I now live and breath avoiding dangers like bacterias and viral infections and encouraging high fat foods and Physio.
My Facebook feed is chockers of posts from CF forums, other parents updates and pages. My daily routine is worked around high fat meals, Physio and time to plan more meals / supps and to research what else can I do. There always has to be more I can do right? There is certainly more to learn. This disease is vast, complex and different for everybody.
Who knew all this existed? There must be lots of other worlds co existing at this very moment. Families who are inundated and consumed with other illness' and conditions. I know two years ago my feed was thermomix, early childhood, and my social life. It just shows how in a New York minute everything can change.
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